cerebal palsy
  Posted: Mon May 02, 2011 9:04 pm
Post subject: Kenty - been away a while, just reading your chat with Laura here - so sorry to read about lumpy!! I know nothing about rett syndrome, but reading between the lines above it sounds severe. Don't know what to say to you hun, but you have all my support and hugs.
Hope you are OK Anna xxx _________________    Posted: Mon May 02, 2011 9:14 pm
Post subject: just been and googled it, and had a good read. Honey I'm so so sorry. You are such a strong person and a wonderful Mum, lumpy could not have a better mother to care for her.
Love to you all Anna xx _________________ Posted: Tue May 03, 2011 8:38 am
Post subject: Yes i dnt no wot to say either kenty. Hope is nt a bad thing. I know retts is severe but seems like ur coping great 4 ur daughter.
I Gt sum shoes frm clarks 4 Georgia as bin waiting 4 boots for 7 weeks and still no appointment so at least she can walk outside on holiday nw. _________________  
 
 Posted: Thu May 05, 2011 9:21 pm
Post subject: DevonMum wrote:
just been and googled it, and had a good read. Honey I'm so so sorry. You are such a strong person and a wonderful Mum, lumpy could not have a better mother to care for her.
Love to you all Anna xx Thanks Anna...i really appreciate it...and that you took a few mins to read up on Rett Syndrome, it's an awful condition...one that could take her away from us at any time...BUT...i wouldn't be half the mum, or woman, i am if it wasn't for Lumpy xxxx i hope you and your babies are all ok? xxx laura...i am so glad for Georgia!!! _________________  
  Posted: Fri May 06, 2011 2:44 am
Post subject: Thankyou kenty.
I cant imagine how u cope kenty must b very difficult but u seem like a brill mam so lilyann is very lucky 4 that, im sure u both help each other thru the ups and dwns. _________________
Posted: Thu Jun 16, 2011 8:38 am
Post subject: shes nw had her boots for 2 weeks and is doin brilliantly u wudnt no shes only been walking 6 weeks.
Gt letter the otha week to say shes on the waiting list for speech and language which is currently 10 weeks. She had hearing test yesterday but failed she cud nt pick up on a certain pitch which suggets sound is nt getting thru the middle part of her ear cud b due to wax or fluid. I Hav 2 put Olive oil drops in her ears and she will b retested if she fails agen she will need 2 hav gromets. Wot i dnt understand is y we hav to wait 3 months for her 2 b retested seems a long time. _________________
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