nicolaoasis

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LauraG
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Posted: Wed Nov 23, 2011 2:30 pm 
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Hi Nicola ,

I know that u r goin thru a similar thing wiv Amy that I am with Georgia

They think Georgia may have something on the autistic spectrum but wont look into a diagnosis till she is 3. She has started speech and language therapy and a signing course but has been declined for portage even though paediatrician and health visitor think she will benefit so there going to try again.

I hope I dnt mind me asking but why do they think Amy has autism and will they be looking into a diagnosis once she's 3.

Georgia shows some traits of autism. She interacts with adults and not children. Her speech is delayed and her communication is really delayed. Its near impossible to get her to interact with I for example she wont let u read a book to her.

Although there's some things that she dus that dnt suggest autism such as role play and affection and has eye contact. Health visitor said autism varies and not all children are the same.
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NicolaOasis
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Posted: Sun Dec 04, 2011 12:45 pm 
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Hi Laura, sorry ive just seen this.

Aimee is being referred for a diagnosis after her next paediatrician appointment in Jan.

Autism is so confusing and im not sure i understand it to be honest, different kids have different traits and they all still have autism. Im not sure about Aimee, if you had asked me 5 months ago if i thought Aimee had autism i would have said yes straight away but now im on the fence.

4 months ago Aimee would only say 4 words, scream whenever any adult or child would talk or look at her and she couldnt/wouldnt communicate with anyone and she was a complete nightmare, really hard work.

Now she says about 140 words, knows her alphabet, knows her colours, counts to 10, she communicates with me and her dad, she's so much more sociable with everyone, she gives lots of cuddles and is doing amazingly well.

She might still have autism but she has improved so much and life is alot easier.

We have just finished a course called " Hanen More Than Words " which basically teaches you strategies to communicate with your child who has autism or a communication disorder. We had an option to go on this course in place of speech therapy and it was really helpful. Aimee will start her speech therapy next month.

Aimee used to be a nightmare for letting me read books to her but she's much better now.

Keep me updated on Georgia but try not to worry too much, Aimee was a nightmare at her age but now things seem to have clicked and her communication is much better


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KaBum
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Posted: Sun Dec 04, 2011 2:26 pm 
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Sorry to butt in (feel free to tell me not to stick my nose in) but I just wanted to add that my brother has low functioning aspergers autism and I used to do lots of volunteer work with children and young people with autistic spectrum disorders. My brother wasn't diagnosed until the age of 14 Shocked despite numerous problems with communication etc

I just thought I'd share mine and my brothers experience in the hope that it may help you....

"Autism is a lifelong developmental disability that affects how a person communicates with, and relates to, other people. It also affects how they make sense of the world around them.

It is a spectrum condition, which means that, while all people with autism share certain difficulties, their condition will affect them in different ways. Some people with autism are able to live relatively independent lives but others may have accompanying learning disabilities and need a lifetime of specialist support".

"People with autism may also experience over- or under-sensitivity to sounds, touch, tastes, smells, light or colours"

"Asperger syndrome is a form of autism. People with Asperger syndrome are often of average or above average intelligence. They have fewer problems with speech but may still have difficulties with understanding and processing language".

My brother, for example, has sensitivities to certain things eg loud rooms/crowds he has to be removed from or he will sit down where he is, cover his ears and rock. He doesn't like christmas tree lights that flash so we have the ones that glow steadily, he simply can't cope with the texture and taste of tomatoes and so on.

He talks well but doesn't actually understand the content of the language, especially certain phrases (such as: 'pull your socks up' he thinks literally means to pull your socks up) and definitely can't interpret non verbal information such as body language and facial expressions. He is fixated with his routine and has obsessions ('specialist subjects')and needs very specific instrutions- repeated often- eg you can't say 'have a shower' you have to say 'have a shower and make sure you wash your face, hair, pits and bits etc)

He has always been affectionate with us, but not others and engaged in role playing games and imaginative play to an extent. As an adult he can't get his head around ideas that have no 'proof' eg religion and he really struggles to understand that people believe in things that there is no proof for. He also cannot empathise and, often, will not sympathise with people either. At 23 he has the emotional age of a 15-16 year old boy, but he is a very generous, loving young man who leads a fulfilling life.

I am no expert but from my experience autism really does affect people very differently, just as every non-autistic person is unique it stands to reason that everyone with autism will be affected differently too. There's lots of 'grey areas' in autism and its impossible to define rigidly the signs and symptoms

So sorry for the waffle Embarassed The national autism society (quoted above) has loads of other info too http://www.autism.org.uk/
NicolaOasis
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Posted: Sun Dec 04, 2011 6:34 pm 
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Feel free to butt in Smile Your brother sounds like a fab young man .

Autism is full of grey areas and its so confusing. Everyday i think about Aimee and autism and everyday i come up with a different answer when i think, has she got autism ?

At the end of the day it would break my heart if she is diagnosed with asd but she'll always just be Aimee to me and i will do everything in my power i can to help make her life easier for her xx
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LauraG
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Posted: Sun Dec 04, 2011 10:06 pm 
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Thankyou both so much for ur replys.

Nicola i can relate so much wiv ur last message i too think every day about Georgia and autism and i too come up with different answers all the time.
Georgia sounds so much like amy with the screaming when ppl talk to her and is so much hard work at the moment we hav gd days and bad days but on bad days can be very difficult for every1. Its brilliant to hear how well amy is doing with colours, words, numbers etc.
Cud i ask u how u cope with ppls comments? Ppl comment on the way Georgia and can't understand that she dus not know what I'm saying to her.

Kabum Thankyou for all the info its really helpful [/quote]
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NicolaOasis
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Posted: Mon Dec 05, 2011 11:26 am 
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The only time i had some comments was when she freaked out in Next and we had to get her outside and fast and when we got outside a woman drew us a really dirty look and i just said " excuse me, would you look at a disabled person that way ? She has autism, she's not a brat " the woman looked a wee bit embarressed so i just said " shame on you for looking down on a 2 year old "

I was so angry but besides that ive had no comments, if you get any comments, i would just say that Georgia has suspected autism which is a communication disorder and she finds it difficult to deal with social situations. And if they are cheeky, i would just ignore them.
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LauraG
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Posted: Mon Dec 05, 2011 11:40 am 
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Sounds great how u handled that nic. How has potty training been?
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NicolaOasis
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Posted: Mon Dec 05, 2011 2:56 pm 
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We're near enough potty trained during the day but she wont ask for a peepee in nursery so she has to have a nappy on then but besides that, we're doing well xx
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LauraG
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Posted: Mon Dec 05, 2011 4:03 pm 
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Thats great really sounds like shes doing brilliant
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LauraG
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Posted: Fri Dec 16, 2011 1:24 pm 
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Just come bk frm Georgias appointment with the consultant and Georgia is significantly behind in communication, speech and understanding and is nt expected to catch up without input frm specialists and she is expected to hav additional needs for the next 5 years at least and will need to go to a special nursery that can deal with her needs.

But on the positive side they are not thinking autism but more a specific communication disorder.
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