Posted: Fri May 23, 2008 1:15 pm
Post subject: Endo
There has been a few ladies on here that either have endometriosis or are being investigated for it, so just thought I would start a post for us to discuss the hell that is endo.
I found out I had endo in Jan 2006. Around July 2005, I had started having extruciating pains for the 2 weeks before af (wasnt ttc at the time) and so went to docs. He suggested that I may have endo and put me on all sorts of drugs to help. Nothing worked and so I was referred to a gynae specialist. I was very lucky and got priv med care through my dh's work. I had the ususal, examinations/scans etc and nothing showed up....as most will know endo isnt visable via scans. Anyways, several tests and drugs later, I had my first laparoscopy in jan 06...my confirmation...yes I had endo. I was put on drugs that stopped af to see if that worked....nope!
Anyway, after lots of drugs another lap and 6 months later, my cons gives up and says my only option is surgery to remove half my womb...NO THANKS!!!! I was referred to see a top endo specialist in Guildford, Nov 07(again luckily, after a bit of a fight, we got it paid for via med ins). He was amazing and instantly told me that I not only had endo, I also had adenomyosis (it is basically endo but instead of growing in tubes, ovaries etc, it seeps through into the muscle of the womb...hence my intensive pain. He arranged for me to go back in Jan 08 and have another lap where he would laser away any endo he could see and also insert the mirena coil to help with the adeno. The op went well and my endo was removed. following a slow recovery, i was finally pain free....and af free which was a total bonus at the time! Unfortunately, the mirena eventually got to me and turned me into the hormonal wife from hell. Feb this year I had it removed and thats how I ended up here, TTC. It was either have it removed and ttc straight away or keep it in and probably lose my marriage....it was THAT bad
For now, my endo and adeno are quiet and although I am absolutely petrified that it will come back, at the min I am reasonably pain free. I am really hoping that I will be pg before it has a chance to build up and cause me misery again
Anyways, thats my story. Endo has affected me in soooooooo many horrible ways, but I refuse to let it take my life or my hopes to become a mummy.
Lots of love and babydust all
Sorry ladies, that turned out to bit a longer post than i had planned!!!
My full story and help advice etc is on
Posted: Sun May 25, 2008 7:08 am
Well luckily for you sounds like you had a great consultant and this shows there can be light at the end of the tunnel for ladies suffering from this....great story I hope you have a 'positive' outcome soon!!!
Sending you lots of babydust ..........
Take care lots of love, Flossie xxxxxxxxx
Posted: Mon Jun 09, 2008 9:26 pm
Post subject: Diagnosed with Endo
It was so good to hear your story and your positive outcome. I don't know where to start with my life!
It started 2 years ago when I had 2 miscarriages. One in March and the second in May. My Husband and I were absolutely heartbroken. Time moved on and we started trying again. We wasn't getting anywhere so we decided to go and get checked out. They discovered that I wasn't ovulating and that I had cysts on both of my ovaries. After waiting months and months for various hospital appointments I went in for my lapraoscapy a month or so ago. To the doctors and my surprise they discovered I've got endo. I haven't had any symptoms nothing. So now I'm just waiting for another appointment to come through so I can go and see a specialist about the endo. Another hurdle to get over. I know we'll get there and hearing stories like yours definitely helps me.
For all the women out there with endo or who have suffered miscarriages there is hope out there. Keep telling yourself that. If I can stay positive then so can you.
Thanks for sharing your story. All the best for the future.