Posted: Thu Feb 14, 2008 9:48 am
Post subject: Views of expectant parents wanted about antenatal screening
Were you offered screening during pregnancy to find out whether your baby had an increased chance of being born with a condition such as Down syndrome? If so, how do you feel about the information and support you were given? Were you told what the screening entailed and what choices you might have to make depending on the results?
A pilot study by the Foundation for People with Learning Disabilities has found that pregnant women and their partners do not always receive the information they need to help them to make decisions about screening. The charity wants to gather the views and experiences of another 300 expectant parents living in the UK, to find out if they have had similar experiences.
Alison Giraud-Saunders from the Foundation for People with Learning Disabilities, says: “If the findings of this much larger study show that the findings are consistent with what we already know, then we will start working with expectant parents as well as midwives and obstetricians to improve how screening is handled, to ensure that pregnant women and their partners are better supported to make decisions.”
Keen to get the views of both parents, the charity is asking expectant mothers and fathers to complete an anonymous questionnaire. Visit www.learningdisabilities.org.uk for more information.