Jan 2012 mummies

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pepperpot
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Posted: Mon Jan 07, 2013 10:08 am 
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Yes hun if you can go might be a good idea just to back him up! Borderline sounds better so hopefully whatever was happening has resolved?

JL they are really keeping you waiting Sad

It's hubby's first day back at work today, he's had two weeks off so am feeling a little strange but seeing some friends later which will be good.

I'm starting work on 10th Feb Crying or Very sad xx
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Clairebear30
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Posted: Mon Jan 07, 2013 9:20 pm 
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I know today was my first day back n tired b4 i left the house lol

Not helped by knowing id a gym class at 6pm, my computer broke n had to wait till 2 for it to get fixed then realised had vat to do!!! N hardly anymoney to pay it - greeeeat!!!

Stress of family business - if it were soneone elses i wouldnt care - or a crook. But they seem to get away with everything Sad

Its always like this this time of year - just need to keep things ticking over few months n will be ok again - then same next year lol

Ber ur excited n nervous about starting back hun!!! Sometimes i wish ady cud work full time n me have issy - but bet that thought would last a week b4 i wanted to work a few days lol

Xx
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pepperpot
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Posted: Wed Jan 09, 2013 8:58 pm 
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How's the gym going? I'm currently eating a box of choccies!

Oliver's first day at nursery tomorrow... I am sooo excited! Just not sure what I'm going to do with myself from 9-3!! Eeek!
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Clairebear30
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Posted: Thu Jan 10, 2013 10:26 am 
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Well...... I went monday - stupid bloke doing s class looking at printed instructions hmmmm ok
Meant to go tues but ran late n had rubbish day
All classes r booked after work till wed next week now!! Stupid way of doing it - can see me cancelling this one n returning to old gym can actually just turn up to clases at Smile

Chocolate... Cow!!! Smile
Ohh that sounds like word assoc games lol

Ahhh bet he will have a great time n b full of stories!!!! Ermm u could.... Teach sophiebum the entire works of shakesp??? Smile

Well adys results came in n all ok really except one liver one - which was bit high - but di. Said if was an issue all liver ones would be high so not important. There is one more specialist test result still not in gor dum type of rare disorder which causes muscle weakness he said - done in oxford - so ring to c if thats in next week. I explained he doesnt sleep well always tired moody etc n he asked if maybe poor sleep over long period can cause lots of physical effects - plus maybe a bit of depression /i wondered too. He hardly has any jobs recently so looks after issy n is at home most days with her so i need to look into a few things i think - need to come up with more enquiries n jobs for him whilst trying to keep our family business afloat too Sad aghhh good times lol

Any more news on when ur results may come back in janey??

Ps i cant stop myself saying "this time last year i wasnt screaming get me an epid" whilst watching obem!! Im terrible - im like god women get a grip - breath thru it n have some drugs lol - terrible uncaring person i am lol

Xx
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pepperpot
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Posted: Thu Jan 10, 2013 12:03 pm 
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Must be so tough having your own business, it's not like you can just forget about it when you've left. And for him he probably thinks it should be roles reversed. Does he get out much with Issy? There are quite a few men who go to the baby groups I go to. You sound like you've got a lot on your plate hun, not easy xx

Everyone books gym classes in Jan, give it another month and they will only be half full. I could do with a bit of toning up but can't be bothered at the mo!

It's very odd (and easy) just having Sophie at home but it's so lovely and she's such a happy girl too. I've already taught her Shakespeare in 5 languages, not sure what to do next, she's waiting to be accepted into Oxford in Sept! She's funny though, spent most of her time so far playing with Oli's trains which she normally gets told off if she dares to look in their direction! She keeps picking them up and looking around with a guilty look on her face. Super cute!

Cow..... Milk?

Exciting day yesterday... Oli did wee wee on the toilet FIVE times!!! Blooming miracle! Today I've put him in a nappy for his first day as its a bit much to expect him to wee there but I've said he might ask. Wish I was a fly on the wall there right now!!

What are you doing for 1st bdays JL and CB? xx
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Clairebear30
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Posted: Fri Jan 11, 2013 8:50 am 
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Milk.... Men Smile

We r having party at mum n dads on satfor issys but her bday is tuesday! Cant believe it!!!!!!

Xx
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pepperpot
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Posted: Mon Jan 14, 2013 9:57 am 
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Men... Far too many thoughts to name just one!

How did the party go?

Having lots of luck with the toilet training... Only one accident since Wednesday! Wow! And that was yesterday morning and the first time he had his trousers on so I think he forgot. Managed a number two aswell am so proud.

Eeek nearly birthday times for our beauties!

JL any news yet? Been thinking of you xx
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JANEYLOU
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Posted: Mon Jan 14, 2013 1:56 pm 
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its bad news girls Sad
my gorgeous little man has muscular dystrophy
we are devastated as you can imagine
we go on wednesday to get the rest of the blood results back
but they are pretty sure its Duchennes
just cant believe it
my perfect little man has this horrendous disabillity
we are struggling to come to terms with it as you can imagine
but we know we have to be strong for the family
he started nursery last week and loved it
but the reality soon sinks in that everything has to be in place for his needs
hope you girls are ok xxxxxxxxx
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tubal reversal april 08
it worked!!!! i had 2 beautiful reversal babies
pepperpot
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Posted: Tue Jan 15, 2013 1:25 pm 
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Oh my goodness hun I am so sorry Crying or Very sad I feel so sad for Ethan and all of you. It must be terrible for you all and I can't imagine how you must all be feeling. All I can say is it looks like you're a very close family and will all help each other. I am so so sorry I don't know what else to say x

You know you can always offload to us if you need someone different to talk to. Sending you all lots of love and massive hugs and thinking of you all xxxxx
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JANEYLOU
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Posted: Tue Jan 15, 2013 8:51 pm 
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thanks hunn Smile
we have a wonderful family and will support each other
i really dont know where we are gonna get the strength from
and i broke down at my mums and said i cant do it!!
i know we have to but its not easy as you can imagine
poor little man...but we are gonna make the years he has left the best ever!!!!
and spoil him rotten lol xxxxxxxxxxxxxxxxxxxxxxxx
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tubal reversal april 08
it worked!!!! i had 2 beautiful reversal babies
pepperpot
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Posted: Wed Jan 16, 2013 1:39 pm 
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I think it's normal to worry about how you're going to cope with everything and feel grief at the loss of the life you wanted for him and expected him to have. I don't know how you're still functioning it must be so hard to put on a brave face for him and Elise too.

He's going to have an amazing life because he has you as his mummy and a brilliant supportive family who will all make it brilliant xxxx
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Clairebear30
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Posted: Wed Jan 16, 2013 9:37 pm 
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Omg chick - ive been so preoccupoed ive not been on here!!

Im sooooooo sorry they have given u this result!!!!!! Im preying they have made a mistake n its not as severe as you fear!

I found this report on the dailymail - the bit i was interested in was the trials n treatments that the uk are doing - i hope you have a great hospital and eonder if they r trying different treatments - things develop all the time n in a few years who knows what will be widely offered hun

http://www.dailymail.co.uk/health/article-2157820/Duchenne-muscular-dystrophy-In-just-years-lively-little-boy-wheelchair-Its-tragedy-hit-ANY-family.html

Im guessing youve found this site - wonder if it will help you guys to speak to others
http://www.muscular-dystrophy.org/research

In the little time ive known you hun n your family - its obvious how strong n close you all are - Ethan will have the life he needs to be happy n feel loved i am sure - he will enjoy his childhood as much as everyone n if things start to worsen early on you will be strong enough by then to push him on so he doesnt feel angry or upset.

You need time to try n understand n talk scenarios through - or maybe you dont want to think now n just enjoy everyday as if you never had that appointment......

Like sarah said - we r here if u feel u need to say things u feel u cant to family n friends who u c all the time or worry what they will think - i wish we could give u a big hug n make it all ok - but most of all i hope Ethan has the best childhood regardless of what may happen as he gets older - as i know he will xx
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JANEYLOU
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Posted: Fri Jan 18, 2013 8:28 am 
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thanks girls Smile
we are seeing his neuro surgeon in preston on the 28th jan
so im going to ask about any trials Ethan can try

i know its going to be a rollercoaster of emotions
but i know as a family we will be strong enough to get us all through this

thanks again for your lovely words Smile it means alot sweeties Smile xxxxxxxxxxxx
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tubal reversal april 08
it worked!!!! i had 2 beautiful reversal babies
pepperpot
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Posted: Fri Jan 18, 2013 9:39 am 
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Another big happy first birthday to Elise! That's 2/3 babies one already, can I stop time so Sophie stays a baby please?

CB said it much better than me, I'm no good with words. I have read up on it and there are quite a few YouTube videos about how well kids are doing on the drug trials. Mostly American but you never know what's going on in the uk. Good that you don't have too long to wait, any questions just write them down first as you think o them as I'm sure when you get in there your mind will go blank xxxx
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JANEYLOU
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Posted: Sat Jan 19, 2013 10:07 am 
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yeah cant believe it!!!!! our little ladies are growing too fast Sad

yeah PP ive got a very long list lol
the trouble is my hubby shuts off when we go to see anyone
hes finding it so hard to come to terms with Sad
but as a mum you have to be strong for everyone
at times you wonder where you get the strength from xxxxxxxxxxx
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tubal reversal april 08
it worked!!!! i had 2 beautiful reversal babies
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