update on Georgia

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LauraG
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Posted: Fri Dec 16, 2011 1:13 pm 
Post subject: update on Georgia
Just come bk frm Georgias appointment with the consultant and Georgia is significantly behind in communication, speech and understanding and is nt expected to catch up without input frm specialists and she is expected to hav additional needs for the next 5 years at least and will need to go to a special nursery that can deal with her needs.

But on the positive side they are not thinking autism but more a specific communication disorder.
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dellabobella
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Posted: Tue Dec 20, 2011 11:20 am 
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That's good that they're not thinking autism. Those nurseries are fantastic. Shannah's in a school now for children with special needs and I can't say enough good things about them. Not to be nosy Laura but have you thought about applying for DLA for her? I know some people don't like the idea of it but if your doctor has said she needs to go to a specialist school and that she is expected to need help for the next five years I can't see how she wouldn't qualify for it. I get it for Shannah and it helps out a lot and I can buy her anything extra she needs without worrying about it so much. A big chunk of the forms are about all the issues they are saying she is behind in.
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LauraG
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Posted: Tue Dec 20, 2011 6:07 pm 
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thankyou for ur reply della.

im glad to hear that shannahs school is good.

i have thort about dla but if im honest i feel bit guilty but as u say she wud probs qualify for it. i was thinking that if the nursery is going to be a fair distance away i will need to get bus or even taxi as i dont drive and dunno where that extra muny will come from? i just hope that she dpes qualify as i thort they were quite fussy with people that dont have a 'label' if u get what i mean.

i think i will apply for it although i have seen the forms as my auntie is disabled and the form seems so daunting. but ur rite it wud help take the pressure off and anything she needed i wouldnt have to thin twice about. and we are at the hospital a lot and im having to go on bus and with georgias communication difficulties this can become very difficult as shes easily upset as she dont know whats happening and can get easily frustarted when waiting and i find it hard to deal with so wud perhaps mean we cud get taxi straight to hospital which wud be a lot quicker as the hospital is 15 mins drive but bus takes 45 mins!!
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MrsOz
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Posted: Tue Dec 20, 2011 7:59 pm 
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Excellent news that they are supporting a referral to special school. Have they talked about going for a 'statement' for Georgia, with you? Although it can be quite a lengthy process it will secure education funding (such as a one to one teaching assistant for her) and mean that regular meetings with all the agencies (school, health, HV, portage) have to meet at least once a year to discuss progress altogether (well, that's how it should be...!).
They start to to give these out from nursery age, but the government are changing how it works (you may have heard of the SEN green paper and SEN white paper - basically how the government will change funding to who and how it is received, due to be finalised <i.e. cut> next year).

Get the statement now and she will be able to keep that funding with her and be given to any school she attends to pay for staffing for her, even when she is older and may be able to join mainstream.

Della - does Shannah have one? Do you have a parents perspective on these? My job means that I deal with the helping of applying for them, and using the money within school, but from a parents point of view I may be useless! if i am right in remembering what parents have told me, you also get more DLA if you have a statement.

xx
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LauraG
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Posted: Tue Dec 20, 2011 9:02 pm 
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i have not heard of a statement before. we are due to meet with our home support worker (social worker) so she may talk about a statement.
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dellabobella
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Posted: Thu Dec 22, 2011 6:30 pm 
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Sorry I've been meaning to reply to this. I really think you should try Laura the worst thing that can happen is they can say no. Just make sure you get somebody to help you with the forms as the wording is everything and even if you are entitled sometimes if you don't word something to right way you don't get the proper rate.

Shannah doesn't have a statement but she's in the process of getting one at the moment and it should be finished soon actually. She's currently in an assessment place at her school as they were confident she would qualify for a place there. I think they are really useful as even if your child is going to a mainstream school I think a statement helps the school qualify for more funding for support which is always useful. I've also found that since Shannah has started this school and they've started her statement that her needs have been taken into consideration much more and she's just been taken more seriously overall. I cant see any negative points about getting a statement myself though I know for some parents seeing everything written down could be quite upsetting as they have to be very blunt in order to give the most accurate view of the child's needs. I don't know about whether you get more DLA when you have a statement but I can see how it would help you gain a higher rate and how it would make the process a lot easier because you have all the reports from the relevant people involved with your child's care so it's not just your opinion or experiences. I've got to reapply (well I've had the forms for about 5 months but can't face finishing them and I'm waiting for her statement to be finished) because Shannah turns 5 soon for Shannah and I'm hoping she still qualifies for what she gets now as it really does help out for things like you mentioned Laura.
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LauraG
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Posted: Thu Dec 22, 2011 7:03 pm 
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i think i will ring for forms 2moro as u say iv gt nothing to loose.

Im nw nt sure if Georgias doctor is doing a statement coz she did ask me are u ok if i write dwn everything weve spoke about and that shes nt expected to catch up without intervention and she said she realises Its upsetting but it needs to be said in order for her to get the rite help.

Do the dla contact the dr? I know she will support everything iv put dwn but she is nt going to be Georgias doctor anymore as we hav been referd to a doctor at whats classed as our local hospital but we hav nt met our new doctor yet so dnt know if this will cause a problem.
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NicolaOasis
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Posted: Thu Dec 22, 2011 8:59 pm 
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Laura, im so pleased that they are not thinking autism, really chuffed for you.
xx
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LauraG
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Posted: Thu Dec 22, 2011 9:11 pm 
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Thanx nic.
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thatonethere
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Posted: Fri Dec 23, 2011 3:14 pm 
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Hia our OT and physio brought the DLA forms, and the OT filled in the part for reference from a health worker or something, we didn't have to get the doctor to sign it or anything, and I don't think they contacted any of our doctors, they also backdate for 3 months and you should get carers allowance of aan extra 50ish on top if she is entitled to DLA. x
LauraG
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Posted: Fri Dec 23, 2011 3:30 pm 
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Thanx hotcross bun for the info, iv phoned today for the forms so they are getting sent out in the post, so will fill them out wen they arrive, is the carers allowance something we need to apply for sepretly if she gets approved for dla or is it automatic?
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thatonethere
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Posted: Fri Dec 23, 2011 6:59 pm 
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Hia once you are in receipt of DLA, you use the DLA number to claim carers allowance xx
LauraG
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Posted: Fri Dec 23, 2011 7:22 pm 
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Thankyou, ill let u know how we get on.
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Miriam84
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Posted: Fri Dec 23, 2011 11:48 pm 
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Hi Laura, just saw this. That's good they're not thinking autism, hopefully she'll get the help she needs now.
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LauraG
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Posted: Mon Dec 26, 2011 3:10 pm 
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thanx mirriam.

im feeling much more positive about it all now i just sometimes wonder y me y my little girl. i just sometimes wish i cud get some time out but it just impossible:( i keep going in the hope that things will progress she will become mroe indpendent and one day this will all be in the past and my little girl will just be like all the other children.
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