Hypermobility in children

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fletchie
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Posted: Fri Apr 13, 2012 5:34 pm 
Post subject: Hypermobility in children
Hi,

1st a bit of background on my daughter. She was born with bilteral hip dyslplaysia which 19 months on, we are still recieving treatment for. We are also awaiting tests for suspected skeltal dysplaysia (short limbed dwarfism). Over last couple of weeks, the phyio has noticed that when she walks with help, she will walk on the sides of her feet. So has ordered some Piedro Boots to hopefully help. She now thinks she has hypermobility in her feet and hands.
Anyone got any experience of this?
mand136
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Posted: Fri Apr 13, 2012 6:44 pm 
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My daughter has hypermobility it was first noticed when she was a newborn,she didnt sit up until she was 12 months and still had to be propped,she took a little longer to walk than my other 2,after she had mastered walking we never noticed any problems until she started school and was complaining of pain in her hands.This hit its peak when she started junior school and had to do a lot more writing,she is now under a specialist for it and has to wear a specially made splint and has pain relief but all in all it is nowhere near as bad as the health visitor led us to believe it would be.
On the plus side she is fantastic at gymnastics and really enjoys it. Smile

Overall she did develop a little late but all in all she is a healthy little girl.

Orthotics are very good with what they can make so i am sure any obstacles that come your way can be dealt with xx
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fletchie
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Posted: Fri Apr 13, 2012 6:50 pm 
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Hi,

Thanks for getting back to me. Because of my daughter's hip condition and the treatment she has gone thru, she has only just started crawling and cruising and she is 19 months!

What or Who are Orthotics? How did they diagnose ur daughter? My daughter is due for another operation regarding her hips at end of month so my physio is going to email the consultant involved in her care and get advice.

Is it worthwhile applying for DLA, as she will have this for life.
LauraG
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Posted: Mon Apr 16, 2012 1:01 pm 
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my daughter has hypermobility it was noticed quite early on. when she was a few months old she had problems with neck movement and then she didnt sit up unaided till almost 11 months and didnt walk till 19 months.

she too walks on inside of her feet as her feet roll in, shes been diagnosed with valgus foot and she has been wearing peidro boots for a year. orthotics are who deal with the feet so they prescribe my daughters footwear. she has now been signed off from orthotics and i was told to buy her a good pair of boots such as kickers. she has one foot worse than the other and the better foot is almost normal now and the other foot theres a huge improvement. i bought her sum kickers boots last week and i thought she was doing pretty well in them but i now realise shes walking on her tip toes which is something the hospital said to look out for so ive rang them and there going to see her on monday.

i claim dla for my daughter not just due to this but due to her communication disorder too. you cant claim mobility till their 5 years old so you would ahve to claim the care component.
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