Autism

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Amandaplus2
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Posted: Thu Jul 05, 2012 9:22 pm 
Post subject: Autism
Hi My youngest son is 25 months and we think he has ASD. He has seen salt and hv have been and completed a form to send to peadtrician. His ears are fine. He cannot talk, has no understanding of language. He does the arm flapping when excited, plays on his own, is fascinated by laptops and phones and get around them better than me. I know he is young for a diagnosis but I am keen to find out what is wrong with him. Has anyone's lo been diagnosed around the same age x
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Jennifer256
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Posted: Fri Jul 06, 2012 11:25 am 
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we have had concerns about Archie for a while but he does have hearing problems which doesn't help and the 'markers' for asd can sometimes be seen in children with hearing issues.

LauraG's daughter has issues like you son and I think has been referred to a communication clinic.

We had been referred to salt and a community paed to see what is thought about Archie, our appointment is the end of the month for paed.

How is slt helping you? I pay private as have waited so long on the ~NHS and find it very helpfull! xx
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amesymc
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Posted: Fri Jul 06, 2012 12:33 pm 
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Amanda i know weve had this convo before. I worry about alfie too - however his hv doesnt seem to be bothered. Hes getting better with his speech, has a good understand and communication. He occasionally walks on his toes and flaps hands but only sometimes. I feel like im in denial but it seems like noone else is bothered by it but me? He seems to be growing out of his circling thing..... its so hard at this age. x
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thatonethere
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Posted: Fri Jul 06, 2012 3:01 pm 
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Hi we have had a preliminary diagnosis of asd, at about the same age, we have then seen special hv, then we see slt and educational phsychology then they all meet together for a full diagnosis. It's a long process but we're getting there. He does the hand flapping, lining things up, routine etc, all classic textbook stuff but he has a beautiful soul and we learn lots from him. We've known for quite a long time that he has this, it's been quite evident for about a year now, andd I kept saying and saying to the health visitors that I knew he had autism and they kept saying it's normal behaviour for children of that age to play beside others but not with others etc etc etc - I felt like I had to really stamp my foot and shout to be listened to sometimes! I ended up keeping a diary and took it into the paediatrician to show him his behavioural patterns.
Hope you get some answers soon x
Amandaplus2
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Posted: Fri Jul 06, 2012 7:45 pm 
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Thanks girls. Amy I think you need to go and see your GP and ask for a referral if you are concerned. You know him better than anyone. Jennifer we have had only 1 appointment with SALT and one phone call, have to wait another few weeks for another appointment. There isn't alot they can do with him at mo just very basic communication things with toys. He isn't ready for signing or picture cards yet.
Hotcrossbu, sorry don't know your name, we have known for a while as well it's just getting tht diagnosis now. Lewis is such a pleasure as well and can be very loving but oh can he bite hard lol
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Jennifer256
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Posted: Fri Jul 06, 2012 8:28 pm 
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Amandaplus2 wrote:
Thanks girls. Amy I think you need to go and see your GP and ask for a referral if you are concerned. You know him better than anyone. Jennifer we have had only 1 appointment with SALT and one phone call, have to wait another few weeks for another appointment. There isn't alot they can do with him at mo just very basic communication things with toys. He isn't ready for signing or picture cards yet.
Hotcrossbu, sorry don't know your name, we have known for a while as well it's just getting tht diagnosis now. Lewis is such a pleasure as well and can be very loving but oh can he bite hard lol



We don't do signing or picture cards at all, as we are working with eye contact at the minute and getting him to interact and it has helped, the slt was made up with at his appointment this week as he wouldn't normally play with her but he played with her and gave loads of eye contact, we are using things that motivate him to encourage all this so mainly animal things as he loves them.
We have has an assesment from slt and now see her monthly.

If you want to see the assesement I can email it to you, it might give you some ideas. We have our NHS assesement soon so will see what they think as well, I am sure a lot of people worry about asd and it turns out to be nothing but I would rather get any support or help as soon as possible. xx
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Amandaplus2
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Posted: Sat Jul 07, 2012 9:11 pm 
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Thanks Jennifer. Had a phone call from slt and she wants us to stop with the picture cards and do what you are doing playing with him trying to get him to communicate thought play etc x
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Jennifer256
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Posted: Sat Jul 07, 2012 9:54 pm 
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Glad your getting help, did she give you any playing exercises to do?

We have been doing ready steady go, so for anything like building blocks we build them high and say ready steady go then knock then over, he should look at you at some point and start taking longer to drag it out as it suppsodely helps, we use it in everyday things too like when we get to a curb in the street or the bottom stair we do ready steady jump and it just seems to promote more interaction.

Another good one we have done is bubbles, he loves them so we start blowing them and then stop, when he gives eye contact you say more you want more? and start blowing them again this has helped LOADS with eye contact, and even to the point that whenever he want anything he comes to me and pulls on me and looks at me, most of the time I haven't got a clue but he has even started pulling me to things, like the sink when he wants me to full his water jug. xx
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Amandaplus2
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Posted: Mon Jul 09, 2012 7:46 pm 
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I will try that Jennifer. When we had the first slt appointment the therapist got some bubbles out and she was trying to get eye contact from him but he just kept looking at the bubbles xx
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thatonethere
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Posted: Tue Jul 10, 2012 6:23 am 
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we us something that motivates him - (Thomas the tank engine) and draw it on the backs of our hands so he looks at them and then play peek a boo, cover your eyes then take them away and he looks at us for a second, then praise him for looking at us. Sometimes we use stickers instead of drawing, it can be tricky doing it backwards! Holding up books to eye level and toys etc is something we do a lot, and really praise when he looks at us.
Another thing we learned from the sunrise program's teaching is to join them in their world - if they sit on the floor rocking and hand-flapping, sit in front of them and do it with them, might seem daft but it joins them in their world and they accept you more then, which leads to bonds being formed. http://www.autismtreatmentcenter.org/

hope this helps xx
LauraG
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Posted: Tue Jul 10, 2012 9:17 am 
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my daughter has been under a paediatrician since birth as she was premature and has problems with development since. she saw her paediatrican last in april and has been referred to communications clinic to be assesed for autism. she will be seen at the communications clinic in january so that means theres a 9 month waiting list, but were gettin all the help and support we need in the meantime.
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Amandaplus2
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Posted: Tue Jul 10, 2012 6:53 pm 
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Thanks ladies. Laura that is a long time to wait. I've been told we should get to see someone August/Sept time x
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gruffalo
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Posted: Tue Jul 10, 2012 7:57 pm 
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Hiya,

I work at a college for adults with profound and multiple learning disabilities, including autism.

HAve you ever heard of a man called Dave Hewiit? He calls this 'coming into their world' Intensive Interaction. I have had training with this guy on a couple of occasions and he is very inspiring, whats more, it works! He has worked with many many children and has improved their means to communicate. I dont know if they are on his website, but i know he had a video library of his work.

Many times, using intensive interaction has allowed me to be a part of a person's world and it has allowed me to communicate more with that person over time. I love doing it and it is so natural, its just as you would with your young son or daughter as a baby. Watching their interaction (whatever it may be) and repeating it. The biggest part of it is making it fun and beginning/ending the interaction on their terms.

This website may be helpful: http://www.intensiveinteraction.co.uk/

MAndy xx
GemGemz85
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Posted: Wed Jul 11, 2012 5:38 pm 
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gruffalo wrote:
Hiya,

I work at a college for adults with profound and multiple learning disabilities, including autism.

HAve you ever heard of a man called Dave Hewiit? He calls this 'coming into their world' Intensive Interaction. I have had training with this guy on a couple of occasions and he is very inspiring, whats more, it works! He has worked with many many children and has improved their means to communicate. I dont know if they are on his website, but i know he had a video library of his work.

Many times, using intensive interaction has allowed me to be a part of a person's world and it has allowed me to communicate more with that person over time. I love doing it and it is so natural, its just as you would with your young son or daughter as a baby. Watching their interaction (whatever it may be) and repeating it. The biggest part of it is making it fun and beginning/ending the interaction on their terms.

This website may be helpful: http://www.intensiveinteraction.co.uk/

MAndy xx


I've had training from him too! He's fantastic! I am a SEN teacher. I would definitely recommend him X
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thatonethere
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Posted: Tue Jul 17, 2012 11:59 am 
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that sounds like the same teaching as the son-rise programme. I don't know about any-one else but in the time between getting a preliminary diagnosis (May) and full diagnosis (Sept) it kinda feels like we've been left in limbo land and not quite sure what to do, just waiting for each appointment one after another with each department specialist until the end, It's like being told your child has an eating disorder and then told they'll tell you more after a year of observations, and you're like well there's so many - eating too much, not eating enough, eating only jelly and pizza, tell me what to do now!
The autistic spectrum is so broad that we are sort of muddling our way through trying what we think is best but felt like we have just been left to get on with it for a bit. We have portage workers and OT, physio, slt but even they don't really know what to do until the full report in September - it feels like ages off!
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