Posted: Thu Jan 16, 2014 12:36 am
Post subject: Feeling very upset. ..
My daughter was born at the beginning of November 2012, and we were having a clear out when I found the notes that the hospital gave me when I left, I decided to sit there and read them. Okay, so it all seemed ok until I got to the bit about how Ava was after the birth.
So all I remember is her not crying after being taken away from me, and the cord being cut. Then I went unconscious after having a fairly severe hemorrhage.
They told me she was fine when I finally got her back and she "didn't need any help". But reading this, it says she needed cpr. I don't know... I was so upset with my experience but now I feel like that was hidden from me. :'(
Am I being stupid?
Posted: Sun Jan 19, 2014 8:44 pm
I don't think you are. My youngest needed special care. They told me a lot of what was going on, his illnesses, his meds etc but on his discharge notes there was an illness I had never heard of, nor had I been told he had it. Also during his time in SCBU I was reading through his stats and he had had a significant drop for wuite a while which they hadn't mentioned to me. I was very upset that they decided to leave this bit of information out. In the end it turned out to not be 'too' serious but it's the principal more then anything. Hope you're ok. xx
<3 We became a couple September 27th 2007
Bubbles went to heaven September 25th 2008
Boo was born December 3rd 2009 (5 weeks early)
Zacky was born June 26th 2011
Pip was born October 17th 2012
Spencer was born 5th August 2013 (6 weeks early)
Posted: Sat Jan 25, 2014 3:06 pm
Late response, but i agree with the girls. My second girl I was told very little and she was NICU then SCBU too but because I was so ill (stayed in HDU for 5 days, until I went to maternity whilst she remained in SBCU). I would not have coped and to be fair I wouldn't have registered. I didn't register how ill I was either. Poppy has a condition which I am cross it was not fully explained at the time / when we were discharge. Even now I fight to get the support we need for her as little is known about it.
Take your time reading the notes. I ordered mine and even now go back to them to get things right in my head. I still get upset - it does everyone's head in when I go on about it but hey, it helps me! lol!
Posted: Sat Jan 25, 2014 7:11 pm
Thank you for the response. I feel silly because really I should be happy that she's healthy and not think about the birth etc (at least that's what people tell me)
It's just one thing of a long list of things that I need to complain to the hospital about...
Thanks everyone, I feel better
Posted: Sat Jan 25, 2014 8:51 pm
I didn't have the same problem but more that my notes included much information that was incorrect. Stating I had refused certain tests or procedures and was a difficult patient, etc. That they had spoken to me about something which they hadn't, they had given me medication on time and not ignored me for 8 hours and given it me 8 hours later and so on . . .
I did complain, I went through pals as I as furious this could happen especially as I'm now going into midwifery and working on a ward have seen how fantastic it CAN be!
I must admit I got nowhere. They took months to get back with me, took my notes and 'LOST' them, (make sure you photocopy them before you hand them over, luckily I had). But the response was long and un readable but basically said 'prove it'.
My point is, try complaining but if you still feel unhappy then try and speak to someone about putting a claim in, I've left it too late now but wish I had because it does stick with you and you need answers. Good luck xx
Posted: Sun Jan 26, 2014 8:21 pm
I also made a PALS complaint 8 years ago after my tumour when they lost my notes, delaying my transferal to the specialist hospital (the consultant at the first hospital stepped in to hurry it along in the end). The response I got was similar of 'prove it' and also because it was after all the treatment and I was recovering they said something along the lines 'at least you are well so it hasn't caused long term ill health'. 5 years later I went on ADs and had counselling bc of it. It destroyed me.
Posted: Mon Feb 10, 2014 7:18 pm
Sorry for late reply, thanks for responses!
hayley2903- I had a similar thing as well, in my notes it said I refused an episiotomy (which I wasn't even offered) and it also says I had am epidural, even though I didn't! Hmm... it's concerning that they don't take it seriously enough. My mum is a midwife and was appalled with the way I was handled.
MrsOz- that's awful! Things like this just shouldn't happen!