Endometriosis

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Noms44
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Posted: Sat Jan 31, 2009 10:30 pm 
Post subject: Endometriosis


Hi I was just wondering if anyone knows of anyone women or a women who suffers with Endometriosis and has got pregnant by doing IVF treatment...I'm in the middle of treatment at the moment so be nice to here some stories. My Endometriosis is at the highest stage and docs told me IVF only thing for me now, and I'm a little scared it won't happen for me because of what I have....so if any women out there is going through what I am would love to here from you .

Thanks all xx[/b]
JulieWoo
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Posted: Sun Feb 01, 2009 4:07 pm 
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Hi Nomms44,

sorry to hear you have endometriosis. I dont have it, so i cant really understand where you are coming from. I wish you all the very best and hope IVF works for you. I do have a fibroid, which isn't helping.

Julie xxx
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marilynmonroe
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Posted: Mon Feb 02, 2009 9:16 pm 
Post subject: endometriosis
hi nomms

i was at consultant last week and was told i will need ivf too.
had a lap & dye and hysteroscopy in october 2008 where they lasered away the endo that was there.
so i may conceive naturally within the next 6 months cause of the laser treatment but my husband has low sperm count too so they are referring us for ivf.

my sister in law had endometriosis and managed to conceive through ivf so i'm trying to stay hopeful.
xx
Noms44
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Posted: Fri Feb 06, 2009 7:37 pm 
Post subject: Re: endometriosis
marilynmonroe wrote:
hi nomms

i was at consultant last week and was told i will need ivf too.
had a lap & dye and hysteroscopy in october 2008 where they lasered away the endo that was there.
so i may conceive naturally within the next 6 months cause of the laser treatment but my husband has low sperm count too so they are referring us for ivf.

my sister in law had endometriosis and managed to conceive through ivf so i'm trying to stay hopeful.
xx


Hi Marilyn

That is great you got Endometriosis lasered off you will have a great chace to concieve naturaly fingers crossed for you, I was never given the option of getting that done maybe mine to bad, its great to hear you sister inlaw conceived through IVF...I'm in the middle of my IVF treatment at the moment so I'm the same as you trying to stay hopefull and positive but its nice to chat to other women that are going through the same thing.

So keep positive you will get there Marilyn thanks for chat xxx
mimilo
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Posted: Sat Feb 07, 2009 11:03 am 
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hi, hope the ivf is going your way. i was just wondering if you have had your endo removed before starting ivf? i have endo too and am having it removed in a couple of weeks, then we get a couple of months of trying naturally and if no luck it's ivf time...
all the very best of luck to you x
Noms44
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Posted: Sat Feb 07, 2009 12:14 pm 
Post subject: Endometriosis
mimilo wrote:
hi, hope the ivf is going your way. i was just wondering if you have had your endo removed before starting ivf? i have endo too and am having it removed in a couple of weeks, then we get a couple of months of trying naturally and if no luck it's ivf time...
all the very best of luck to you x


Hi I have heard of getting Edometriosis removed alright before IVF haven't heard if it works but I'm sure it will that will give you a great chance to concieve naturally I was never given that option and if I had I definately done it...do you know what stage your endo is at? I was told mine was at stage 6 the highest so maybe mine couldn't be removed but I was told when you get pregnant Endometriosis goes comletely so finger crossed for both of us Smile
Lizziej
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Posted: Sat Feb 07, 2009 5:57 pm 
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Hi Noms,

I had a friend who had serve endrometriosis and did a number of IVF cycles. Before doing IVF she did get pregnant but it was eptopic and she lost a tube. She was able to get pregnant with IVF in the long run.

There is hope. Dr.'s are pretty good at telling you when hope is lost- so if they are still trying that means there is hope.

Is this your first cycle?

From my friends experinece it can take more than one cycle- so don't give up hope.

Lizzie
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mimilo
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Posted: Sat Feb 07, 2009 9:35 pm 
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hi again, i really don't want to stress you out or anything but i was just gonna suggest that you talk to your doctor more about this because the one i'm seeing, who is a leading specialist in this field, will not let me do ivf without removing the endo as it will still interfer with my chances of getting pregnant in the same way as it would in a natural cycle. also, endo does not go away when you're pregnant, the symptoms just don't show as much but after the baby is born and breastfeeding stops, they come back. and he say all endo can be removed, regardless of it's severity, it just gets a bit more complicated if there is more. (mine is 4-5). i really hope i haven't upset you with all this but i'd hate for you to go through this tough time without the right information. i really hope everything works out well for you and you get your bfp very soon. all the best xx
Lizziej
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Posted: Sat Feb 07, 2009 11:58 pm 
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I agree with mimilo,

I had stage two endo, along with polyips and the dr was pretty sure that infertility was caused by the endometriosis.

You should get a second opinion about removing the endo-

Lizzie
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Noms44
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Posted: Sun Feb 08, 2009 7:38 am 
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mimilo wrote:
hi again, i really don't want to stress you out or anything but i was just gonna suggest that you talk to your doctor more about this because the one i'm seeing, who is a leading specialist in this field, will not let me do ivf without removing the endo as it will still interfer with my chances of getting pregnant in the same way as it would in a natural cycle. also, endo does not go away when you're pregnant, the symptoms just don't show as much but after the baby is born and breastfeeding stops, they come back. and he say all endo can be removed, regardless of it's severity, it just gets a bit more complicated if there is more. (mine is 4-5). i really hope i haven't upset you with all this but i'd hate for you to go through this tough time without the right information. i really hope everything works out well for you and you get your bfp very soon. all the best xx


Thanks for that no you didn't upset me at all god I appreciate everything anyone says great to here that alot of you had your Endo removed just don't understand why I was told to get mine removed, I had a very big cyst on my left ovary had that removed thats when they noticed I had endo. The clinic I'm going to she is a leading specialist too and she's always on tv that how I found her and she's suppose to be the best in Ireland and I'm due to do egg retrievel this wednesday but I will ask them Monday have my 3 baseline scan so see what they say back to me. If it doesn't work this time round I will definately go get it removed. So I will let you know what they have to say to me.

Thanks a mill for advice girls helped alot nice to be able to talk to someone going or gone through the same all the best Noms xx
Lizziej
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Posted: Sun Feb 08, 2009 2:56 pm 
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I have to say that in addition to the fertility benifits. AF isn't half the witch she used to be now that the endo and polyips are gone.

Good Luck.

Lizzie
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Minxymoo
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Posted: Wed Feb 18, 2009 9:28 am 
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Hi ladies,
I have Endo & PCOS. Had them both treated by lap&dye Nov08. No luck yet but the 6 mths isn't up yet!

I also had a friend with really bad Endo who conceived naturally without having it treated at all just a lucky egg i guess!

Good luck to u all xxx
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Noms44
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Posted: Fri Feb 27, 2009 6:14 pm 
Post subject: Endometriosis
mimilo wrote:
hi again, i really don't want to stress you out or anything but i was just gonna suggest that you talk to your doctor more about this because the one i'm seeing, who is a leading specialist in this field, will not let me do ivf without removing the endo as it will still interfer with my chances of getting pregnant in the same way as it would in a natural cycle. also, endo does not go away when you're pregnant, the symptoms just don't show as much but after the baby is born and breastfeeding stops, they come back. and he say all endo can be removed, regardless of it's severity, it just gets a bit more complicated if there is more. (mine is 4-5). i really hope i haven't upset you with all this but i'd hate for you to go through this tough time without the right information. i really hope everything works out well for you and you get your bfp very soon. all the best xx


Hi again I just wanted to let you know that I really took into consideration about getting my Endo removed after I read your story I was just about to go egg retrieval when I chatted to you last and was to late to pull out but since then I found out today my IVF failed and Im so annoyed that I was never told about getting my Endo removed and I asked could I and was told no need but this is my second attempt of IVF and I won't do another one until I get it removed have an appointment with the clinic that done IVF Wednesday and going to my own GP Monday for second opinion cause its just to stressfull having to go through IVF when maybe I have better chance if Endo lazered off. Did you get your endo removed yet?hope you don't mind me asking and do they put you asleep for it?

Just wanted to say thank you for your advice is really helping me more now to push for what I need done thanks again xxxx
mimilo
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Posted: Tue Mar 03, 2009 5:34 am 
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hi noms,
i'm sorry to hear that your cycle failed. hope you're doing ok.
i had my endo removed on thursday and it went really well apparently, but yes, it is a proper surgical procedure where they do put you to sleep. mine was done by keyhole surgery, i think most are, so i have four little cuts on my tummy now. i was in hospital for two nights afterwards. i'm feeling much better now but you do have to expect to be a bit sore and uncomfortable for a few days. i was mainly bloated/swollen around my belly, had a bad tummy and was lightheaded/groggy. it's not fun but it's bearable.
my doc definitely said that endo affects an ivf cycle too, like it would a normal cycle, because of the hormones etc that it interfers with, which is why i had the surgery done. also, he has adviced us to only try naturally for about 4 months now so that, if no luck, we can start ivf before the endo starts growing back again. so the way he sees it, it matters a lot. it's strange that yours said it doesn't matter. i will ask my doc again for the exact details next time i see him. if i was you, i'd do some research to find an endo specialist, because it is a condition that not much is known about, so i think GPs often don't have the full story on it.
all the best of luck noms, and let me know how you get on xx
mimilo
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Posted: Tue Mar 03, 2009 5:44 am 
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hi again, i just read one of your old posts again and saw that you already ARE seeing a specialist, sorry. it's totally weird that they don't say the same thing! i'm definitely going to tripple-ask mine about this. i'll let you know.
also, you might like to know that he says its way better to have it removed by excision than lazer, apparently it stays away longer and they don;t miss anything that way x
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