Please look at this

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Joined: 11 Jul 2007
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Posted: Mon Jun 30, 2008 10:29 pm 
Post subject: Please look at this
Hi all. My daughter Tiana was born 16th december 2007. she had 2 heart defects, one of which is very rare called Alcapa. Tiana had 2 ops in march this year and has now been home 3 weeks . please take a look at her website to read her full story


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Posted: Tue Jul 01, 2008 1:05 pm 
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Oh Lisa, that's such a beautifully written website. You guys are so incredibly strong to have come through something like this and you have all my best wishes for Tiana's continued recovery and future. My 6 month old son had his operation to repair his cleft palate last week, and despite the incredibly minimal risk of anything going terminally wrong, it was still the longest 2 hours of my life while he was on the operating table. My heart goes out to you when I think of you going through a 5 and 6 hour incredibly risky operation!!

It sounds like you had a wonderful surgeon, and are dealing with everything phenomenally well. Plus - Tiana is just gorgeous!! Very Happy

Well done all of you!
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Posted: Tue Jul 01, 2008 1:35 pm 
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Just want to say, i wish you all the best, think its fantastic you can share your story with us. i really hope Tiana is doing well and making a full recovery.
And think your hole family are incredibly brave and strong.
She looks so pretty and a little angle, thank goodness for the doctors these days, they can do so much.

Please keep us update as to how you are all doing..

Sending lots of love
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Posted: Tue Jul 01, 2008 7:16 pm 
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Hi. My son also has a heart problem so i kno how u feel. Luckily he has not had an operation yet, they want 2wait as long as possible and hopefully do it when he is a teenager. His problem was discovered when he was nearly 2 weeks old. He is now nearly 6 and is now doing great. I hope your daughter goes frm strength 2 strength as well. Nikki x
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