Posted: Thu Nov 12, 2009 2:57 pm
Post subject: rumaisa . neuro degenerative brain disorder
im sadaf from pakistan. i have a beautiful daughter named rumaisa . she is 7 yrs old. she was delayed but acheived most of the milestones like sitting , crawling , standing with support , babbling . @ the age of two yrs she had an onset of fits and faced brain attrophy... drs call it a neurodegenerative brain disorder. since then she is in comatose state with absolute no responses.
i hv her old and new pics on facebook ...those who wish to share my lovely daughters pics can request me on sadafaisalr@ hotmail.com.
please pray for her that may Allah relieves her pain and makes her comfortable and grants us strength and resources to manage her pain and provide her the best we can.
Posted: Mon Nov 16, 2009 7:09 am
Just wanted to share my best wishes with you and your daughter. I am a teacher in a special needs school and some of our children are severely disabled like your daughter. I am sure that she knows how much you do for her and that she feels loved. Feeling loved and wanted is the most important thing you can give a child. Im not on facebook sorry.