Posted: Thu Nov 29, 2007 12:06 pm
Post subject: Hypospadius
I was just wondering whether anyone out there has a son with a hypospadius. I'm always being told how comman it is but have never found another parent whose child has this, either corrected or uncorrected. It would be great to chat to some one else about this as when ever I mention it everyone looks at me like I've got 2 heads and we are just dececiding whether to have his corrective surgery performed now or whether to wait till he is older.
Anyone who could offer any words of wisdom would be greatly appreciated.
Posted: Wed Dec 05, 2007 11:00 am
Post subject: Hypothesis
Hi just thought u'd like ta know that if ur concerened there's a web sit at www.null-hypothesis.co.uk. I'f your still concered go to your local baby nurse or your own GP and they will contact you with groups of parent'sin the same sisuation as your self. I'm a childcare worker and I see parents in your situation all the time, beleave me your not alone. Let me know how you get on and my thoughts are with you.
Posted: Mon Feb 11, 2008 5:53 pm
hypospadias is a common birth defect. undescended testicles are more common. when i say common, youd have to have ALOT of friends before youd be able to talk about it but in terms of frequency in overall population it is not uncommon. it may have a genetic component. good news is its VERY correctable. but i wont lie to you. it does require real surgery and healing. and there is a reasonable chance it will require two surgeries. I am not trying to scare you. ive known two people with this and both turned out well. one was done in one surgery the other in two.it depends on two things a)severity of hypospadias and b)whether or not there are side effects. Be aware the second surgery is NEVER nearly as long or complicated as the first. You MUST find a pediatric urologist who has done alot of these. thats all. long story short urethra either doesnt go to tip of penis OR is very thin and frail. they build up a new urethra. they also circumsize baby. DO not circumsize your baby, they use the foreskin to build the urethra. they can also use cheek cells but foreskin is better. 10 years ago the surgery had infinitely more complications. now it has an extremely high success rate. thank heavens for modern medicine. dont worry. babies are amazingly resilient. your child will likely have surgery at a year.
Posted: Fri Feb 15, 2008 10:01 am
Hi, Thanks for your kind words.
We've still having fun trying to get specialist care for my son. Currently he is being monitored at a hospital that does the corrective surgery once every two to three months if that, and who doesn't have a specialised paediatric urologist. My son is 21mths at the moment so sooner rather than later he needs the corrective surgery. Especially as he has been hospitalised twice with serious urine infections. I'm taking temps of 40 and rigours for two days, not nice. My GP is helping us put together a case to take to the local PCT to get funding to a specialist centre. I agree modern medicine is good but the red tape stinks.
No-one seems to understand that this surgery requires specialist training, not just any one having a bash at it, that was until I asked my GP ( a man) how he'd feel is it was his bits under discussion or even his childs. It was a rather bizzare conversation I can tell you but at least he now seems to understand. It's eithe rthan or he just wants to get rid of the mad mother who discusses his bits and pices if you get my meaning.
Thanks Again and wish us luck.