Posted: Mon May 02, 2011 9:04 pm
Kenty - been away a while, just reading your chat with Laura here - so sorry to read about lumpy!! I know nothing about rett syndrome, but reading between the lines above it sounds severe. Don't know what to say to you hun, but you have all my support and hugs.
Hope you are OK
Posted: Tue May 03, 2011 8:38 am
Yes i dnt no wot to say either kenty. Hope is nt a bad thing. I know retts is severe but seems like ur coping great 4 ur daughter.
I Gt sum shoes frm clarks 4 Georgia as bin waiting 4 boots for 7 weeks and still no appointment so at least she can walk outside on holiday nw.
Posted: Thu May 05, 2011 9:21 pm
just been and googled it, and had a good read. Honey I'm so so sorry. You are such a strong person and a wonderful Mum, lumpy could not have a better mother to care for her.
Love to you all
Thanks Anna...i really appreciate it...and that you took a few mins to read up on Rett Syndrome, it's an awful condition...one that could take her away from us at any time...BUT...i wouldn't be half the mum, or woman, i am if it wasn't for Lumpy xxxx
i hope you and your babies are all ok? xxx
laura...i am so glad for Georgia!!!
Posted: Thu Jun 16, 2011 8:38 am
shes nw had her boots for 2 weeks and is doin brilliantly u wudnt no shes only been walking 6 weeks.
Gt letter the otha week to say shes on the waiting list for speech and language which is currently 10 weeks.
She had hearing test yesterday but failed she cud nt pick up on a certain pitch which suggets sound is nt getting thru the middle part of her ear cud b due to wax or fluid. I Hav 2 put Olive oil drops in her ears and she will b retested if she fails agen she will need 2 hav gromets. Wot i dnt understand is y we hav to wait 3 months for her 2 b retested seems a long time.